We argued that sharing data and undertaking secondary analysis can take many forms, and bring many benefits. But it can be ethically complex. One of the considerations that we discussed was responsibilities to participants and to the original researchers, and the need to achieve a contextual understanding of the data by identifying and countering risks of misinterpretation. We highlighted the importance of developing and maintaining trusting relationships between research participants, primary and secondary researchers.
Novella involved a team of qualitative researchers, and we did not fully discuss the ethics of secondary analysis of survey data, bar touching on questions of informed consent. But one of the questions that I’ve long been concerned about, based on experiences at Young Lives of seeing research based on our publically-archived survey data being used in ways very far from the intentions of our study (which is to explore childhood poverty over time), is the following: how do the people we study and write about, feel about the interpretation and use we make of their data? Might they object to how their data are used, and how they are represented in research findings and other media dissemination?
So I was fascinated to learn about the EU-funded project, entitled TRUST, that has led to the generation of the San Code of Research Ethics, launched by the South African San Institute a couple of weeks ago (this video gives a great insight to the project).